Camp UBPN 2024

Who is ready for some Camp UBPN 2024 Information!!!!! 

Registration website will go live December 1

I wanted to get information to you so you can start planning!!! Also, if you are going to be flying to St. Louis, I suggest not waiting until later to book your flights! Last year going to Denver, the 3 months prior to camp the fares skyrocketed!!! I would book your airfare after you get registered, as soon as you find a good fare!!!!

Camp UBPN 2024!!!

Location: YMCA of the Ozarks, Potosi, Missouri

Dates: July 18 – 22, 2024 

CAMP UBPN 2024 is a family camp for all of those affected by brachial plexus injuries (adults and children). Speaker sessions include discussions with brachial plexus specialists and therapists, round table discussions for the injured, parents, and siblings, group and individual activities including rock wall climbing, swimming, water activities, archery, zip lining, and much more!

EVERYONE UNDER 18 MUST BE ACCOMPANIED BY AN ADULT!!! This is not a camp that you send your child to for the weekend without you!

The cost for camp will be $399 per person for ages 5 and up. Ages 4 and under will be $25. UBPN's goal is to have all of those injured attend for free, and our second goal is to have the family members attend for free, also! This will take a lot of fundraising!! The organization is working on some fundraising opportunities, but you can also come up with some of your own in your community. Here in my community, I have started an annual golf tournament. The Vargas family had a fabulous haunted house this year and are working on some other events. We need ALL of us working together to reach our goals! We need to raise at least $30,000 to cover the cost for the injured, and to cover all we need to raise at least $130,000. We can do it if we all work together!!! Everyone pays until goals are reached.

There are a few options for lodging:

GUEST ROOMS: Hotel style rooms that can accommodate up to 5 people. Each room has 2 queen beds and a roll-a-way bed. Bathroom with exterior sink and vanity. Table and chairs. Walkout balcony with seating and a lake view.

LOFT ROOMS: AVAILABLE FOR AN UPGRADE CHARGE OF $50 (19 AVAILABLE)

These rooms can accommodate up to 6 people. Upper Level has a couch and 2 roll-a-way beds, sink & vanity, table & chairs, small refrigerator. Lower Level has 2 queen beds, bathroom w/ exterior sink & vanity, balcony with lake view.

LAKE VIEW CABINS:AVAILABLE FOR AN UPGRADE CHARGE OF $100 (10 AVAILABLE)

(SIDE BY SIDE DUPLEX UNITS (ACCOMMODATES UP TO 5 PEOPLE ON EACH SIDE)

Each side has bedroom with full size bed, set of bunk beds and 2 roll-a-way beds, bathroom, living area with couch, table & chairs, stone fireplace, small refrigerator & microwave, screened-in wrap around porch.

FOREST VIEW CABINS: AVAILABLE FOR AN UPGRADE CHARGE OF $100 (10 AVAILABLE)

(SIDE BY SIDE DUPLEX UNITS (ACCOMMODATES UP TO 5 PEOPLE ON EACH SIDE)

Each side has bedroom with full size bed, set of bunk beds and 2 roll-a-way beds, bathroom, living area with couch, table & chairs, stone fireplace, small refrigerator & microwave, screened-in porch with rocking chairs.

THERE WILL BE A $75 NON-REFUNDABLE REGISTRATION FEE APPLIED TO EACH ROOM!!! If your family size requires more than one room, or if you choose more than one room you will have to pay the non-refundable $75 per room registration fee on each room.

CANCELLATION POLICY:

If you register, and then cancel BEFORE December 1, 2023, you can get what you have paid minus the $75 non-refundable registration fee.

If you cancel BEFORE February 1, 2024, you can get 50% of what you have paid for camp, not including the $75 non-refundable registration fee.

If you cancel AFTER April 1, 2024, you will forfeit all monies paid. You can transfer your spot to another family.

Any questions, contact Kimberly at This email address is being protected from spambots. You need JavaScript enabled to view it.

CONGRATS UBPN 2022 Scholarship Winners!

CONGRATS UBPN 2022 Scholarship Winners! 

Congratulations to the 2022 UBPN Nancy Birk Memorial Scholarship recipients Rachael Blair (OBPI) and Hannah Bockelman (TBPI), who will be awarded $500 each!

Congratulations to the 2022 UBPN Academic Scholarship recipients Gabriella Sabwa (OBPI) and Marie Macher (TBPI), who will be awarded $250 each!

There were many exceptional candidates this year and it was difficult to choose just one person for each category for each scholarship as each and every applicant is more than worthy of these scholarships!

UBPN would like to thank our two anonymous donors who have made these scholarships possible and we’re excited to continue to offer these academic and trade school scholarships again in 2023! Thank you from the bottom of our hearts.

Meet Rachael Blair - Rachael has an obstetrical brachial plexus injury and is excited to pursue her dreams! A few words from Rachael: “I am extremely honored to have been awarded a scholarship by the UBPN. Thank you for your generosity, I will use this scholarship to continue my graduate studies in Medical Physics. I take a certification exam through the American Board of Radiology this winter as part of my Medical Physics career and this scholarship will help with that. I am very grateful there is such a supportive BPI community and I feel comforted to know that you all support my academic endeavors to make my dreams come a reality.”

Meet Hannah Bockelman - Hannah acquired a traumatic brachial plexus injury at the age of 16 and is proving she can overcome any obstacle in her path! A few words from Hannah: “I am currently a senior at Oklahoma State University studying recreational therapy, pre occupational therapy! Five years ago, I was in a car accident that caused my brachial plexus injury. With learning how to adjust to living with the adaptations of my injuries I have found comfort in helping others with physical disabilities as well. I am so thankful to be where I am today and I hope I can help others feel comfortable in their daily walk of life!”

Meet Gabriella Sabwa - Gabriella has an obstetrical brachial plexus injury and doesn’t let anything stand in the way of her dreams! A few words from Gabriella: "Thank you to UBPN for not only believing in me but also for showing support for so many other individuals who have brachial plexus injuries. I am honored to be a recipient this year! This scholarship will help me continue my dreams of attending law school once I finish my undergrad at Temple University in the spring. Thank you once again for the support UBPN gives to all of us with BPIs."

Meet Marie Macher - Marie acquired a traumatic brachial plexus injury nearly 14 years ago and has had many curve balls thrown her way and she absolutely refuses to let them derail her! A few words from Marie: “Thank you so much. I am so excited. I really appreciate the help. This will allow me to pursue my dream of continuing to gain further education about helping other students with disabilities.”

#ubpn #bpbi #erbs #obpi #tbpi #nerveinjury #brachialplexusinjury #brachialplexusinjuryawareness #bpiwarrior #bpistrong #scholarships2022 #erbspalsy #BPI #brachialplexuspalsy #brachialplexus #adaptability #birthinjury

UBPN Annual Academic Scholarships

Program Information:

Through generous anonymous donations, the United Brachial Plexus Network (UBPN) grants 4 academic scholarships annually to individuals with Brachial Plexus Injuries attending college, trade school, and/or career retraining. Two (2) UBPN Nancy Birk Memorial Scholarships ($500 each) and two (2) UBPN Academic Scholarships ($250 each) will be awarded annually to the top four applicants:

• (2) Brachial Plexus Birth Injuries (BPBI, aka OBPI, Erb’s Palsy)
• (2) Traumatic Brachial Plexus Injuries (TBPI / non-birth related)

In the event there are less than two applicants from either injury category, the remaining scholarship(s) will be given to the next best applicants from the existing pool. Individuals can reapply each year they attend any of the above education programs. Winners from one year are not eligible to win first place the following year but can still be considered for the second place scholarship.

Scholarship applications for the 2023-2024 school year open:

February 1, 2023 - May 31, 2023

Applications will be reviewed by the Scholarship Committee and winners will be notified on or before August 15th.

This is an individual scholarship that may be reapplied for every year. 

***Click here to apply*** 

Questions please email This email address is being protected from spambots. You need JavaScript enabled to view it.

Starting this year, the scholarship awarded to individuals with brachial plexus birth injuries will be called:

The UBPN Nancy Birk Memorial Scholarship.

Please keep reading to learn more about the namesake of this portion of our scholarship program.

Nancy Birk

August 1953 - October 2021

Nancy, born in Lowell, MA in 1953, was diagnosed with a paralyzed left arm, with all five ruptured plexus nerves and Horner’s syndrome as a result of a difficult birth.  Growing up, she knew she had Erb’s palsy and even visited Boston Children’s hospital as an infant for follow-up treatment.  She moved to Ohio when she was five where she had two surgeries at ages 9 and 11 similar to today’s tendon and muscle transfers at Cincinnati Children’s Hospital.  Nancy served UBPN in various functions from 1999 until 2009, including three years as Secretary and 6 years as President/Past President.  Nancy was one of the Founders of UBPN; she was there from the drafting of Articles of Incorporation and contributed to developing a mission statement and forming the vision of what UBPN would represent. 

Outside of UBPN, Nancy worked at Kent State where she was a faculty professor of Library and Media Services, serving as the University’s archivist and curator of special collections.  She also taught in the graduate school of library and information science.  Upon retirement from UBPN and Kent State, Nancy would also often travel to Greece where she had the position of the director of a library at the American College of Thessaloniki. Nancy met her husband Tim while at university as students, and together they raised their son Josh who now has his own children.

Nancy passed away in 2021 after a difficult battle with pancreatic cancer. She served UBPN on paper for 10 years, but she has been more to the BPI community for most of her life, traveling to speak at events and helping the Board of Directors for years past her retirement.  It is our honor going forward to name the UBPN scholarship for individuals with birth injuries in her name.  Starting with the 2022-2023 application, the scholarship will forever be known as the Nancy Birk UBPN Academic Scholarship.

TBPI’s your help is needed!

TBPI’s your help is needed!

Up to $100 compensation for your TBPI experience and wisdom.

* UBPN is supporting this research because TBPI patient empowerment, health, and wellbeing is its goal & purpose.

BRIEF:

• 32 TBPI volunteers needed (or possibly more).
• $50 compensation for an estimated 50-60 minutes for participation in each 1 of the 2 studies. Volunteering for both studies doubles the compensation to $100.  
• Your TBPI experience and feedback are needed can help improve how newly injured TBPIs are medically treated. Participate in either 1 or both of 2 of these TBPI research studies funded by National Institutes of Health (NIH), conducted by the BPI Team at the Washington University School of Medicine in St. Louis. Both studies aim to improve the TBPI patient’s quality of care and are specifically TBPI-oriented from previous TBPI reported experiences.

You may participate in both studies if the below requirements are met:

• 25 TBPI volunteers: who have had surgery for their TBPI at some point. No time frame necessary.
• 32 TBPI volunteers: (conducted in 2 phases) 16 partial BPI & 16 complete BPI (complete = all 5 nerves injured at the time of injury / partial is not all 5 nerves injured)

Aim 3 - BPI Outcomes Assessment - UBPN recruitment details (R01 NIH Grant)

BRIEF: “Find and fix any “blind spots” within current medical assessments for TBPI medical treatments.”

• 25 TBPI volunteers: who have had BPI surgery - date of injury not important for study.
• Volunteers to complete: (20-25 min estimated to complete)
• 2 Demographic Questionnaires: (brief)
• 3 BPI related questionnaires: DASH, SF-36, & Postoperative Impact of BPI
• 1 Interview via Zoom: (20-30 min estimated to complete) 
• Time requirements: under 1 hour total for $50 compensation via check 
• STUDY BRIEF & CONTACT INFO: click here

TBPI JOURNEY GUIDE Participation - UBPN recruitment details (R03 NIH Grant)

BRIEF: “A BPI Guide that’s like a coach to help the newly injured navigate recovery as best as possible.” 

• 32 TBPI volunteers: (study conducted in 2 phases) date of injury not important for study.
  • Phase 1: 16 TBPI volunteers (8 partial BPI & 8 complete BPI/pan-plexus).
  • Phase 2: 16 TBPI volunteers (8 partial BPI & 8 complete BPI/pan-plexus).
• 16 partial BPI & 16 complete BPI(complete = all 5 nerves injured at time of injury/ partial is not all 5)
• Demographic Questionnaire (brief in length)
• TBPI Journey Guide: volunteer to read existing guide.
• Feedback survey: after the guide has been read.
• 1  interview via Zoom: (20-30 min estimated to complete, after Feedback survey is completed) 
• Time requirements: under 1 hour total for $50 compensation with Amazon.com gift card
• Anonymous: no identities disclosed with research results.
• STUDY BRIEF & CONTACT INFO: click here

"As a TBPI of almost 19 years, the last 14 of those I’ve remained involved with UBPN, part of helping & fighting for TBPIs wellbeing and health. I firmly believe this research work will profoundly improve the overall medical treatment of all future TBPIs. For once, the “whole-individual” (not just parts of a damaged body) is being considered and addressed during their personally unique experience of TBPI. From devastation this injured can wreak, a path has been charted out to encourage the newly injured’s engagement and empowerment. Help us make sure this guide is worthy for all TBPIs!" - Christopher Janney, President, UBPN Board of Directors

PS: For research publications by Dr. Christopher Dy, these two studies' lead researcher, click here: PUB-MED listing of all Dr Dy research (119 publications) or including “brachial plexus” (27 publications) only.

Christopher J. Dy, MD MPH FACS | Assistant Professor
Division of Hand and Microsurgery | Department of Orthopaedic Surgery
Division of Public Health Sciences | Department of Surgery
Washington University School of Medicine
twitter: @ChrisDyMD | nerveresearch.wustl.edu
NEW Podcast: The Upper Hand – Chuck and Chris Talk Hand Surgery