United Brachial Plexus Network

How many opinions have you received for the tendon transfer? If I've learned anything in 11+ years with this injury, it is to take your time making decisions. And get lots of opinions. As for your worries about handling rehab... since your child will only be about 3, the "rehab" does not f...

Congrats on the potty training! I just LOVED giving up diapers. Juliana can't pull down or pull up her pants two handed. She always done it one handed. If she is with other people (like she is wearing a bathing suit under her clothes) she puts her left (affected) hand on her pants, but it doesn't do...

I'm probably going to take a lot of flak for this, but I didn't do ROM 6 times a day with juliana. I did it maybe 3 times a day. Everything else was play. As for the therapist, why doesn't your wife sit closer? I was either right nearby or out of the room. I didn't start being out of the room until ...

First question: How often is therapy? Second question: Are you using e-stim at every therapy appointment? Now, after having done a ton of therapy in our 11 years of this injury, my opinion: I think therapy is incredibly important. I also think that therapy comes in lots of different sizes and shapes...

To both of you new moms: I am sorry you had to find us, but I'm glad you did. You definitely need to go to our Medical Resources page. Not only are the doctors and their contact information listed there, but they have completed a questionnaire which will tell you something about their practice. I al...

Isys Mom: We have a great Medical Resource page on this website. Please use it!! I always recommend that people get 2-3 opinions. This injury is very complex and doctor's views can vary quite a bit. I know it is hard to go from doctor to doctor, but most of the docs who are on the website are "...

I just wanted to clarify that if you already paid for a child over the age of 13, we will refund your money.

claudia

Hi Everyone! we have great news about camp! now every child, 17 years old and under, are FREE at camp!! There is a limit of 3 free children per registration. we hope this helps many of you who are considering camp. remember, you can find our registration form on the website. if you already registere...

Hey everyone! We have wonderful news for those of you already signed up for camp and for those of you who were wondering if you could afford to go. Now, all children 17 and under are free! There is a limit of 3 free children per registration. We hope this will make camp even more affordable. We have...

If you live in San Francisco, why don't you go down to LA and see Michael Pearl. He started this surgery (if you are looking for experience...). We took our daughter to see him a few years ago, she was not a candidate for ACR,but he was incredibly nice and very helpful. of course, Kozin and Waters a...