United Brachial Plexus Network

Here is a paper discussing (I couldn't find the one I was referring to earlier) brown-sequard syndrome in brachial plexus injuries. Aparently it occurs in 2-5% of those with avulsions and can be very late onset (years or a decade even). Have you seen a specialist about this? It looks like in some ca...

I read a paper not too long ago that discussed the development of hemiplegia years after a brachial plexus injury with avulsions. If I remember correctly it did mention that this is a rare complication. I suppose this is essentially a brown-sequard syndrome that has developed years after the injury....

Hey everyone, So I thought I would give a quick update. I had a second opinion in Edmonton Canada (Four actually). One was from my previous pain specialist. His opinion was that there is a real risk of it bringing back the neuropathic pain, although he couldn't predict the severity or how long it wi...

Hi Lisa, I dont wear a sling anymore (unless i'm doing something that requires it to be close to my body). I put my hand in my pocket for most of my daily activities etc. I found that a sling hurt my back after awhile. I had one sling custom made in the early days that has Velcro on the front. The s...

Hey everyone, Just an update: I had my appointment with prof Kay in Leeds. He suggested I consider a fused shoulder with a below elbow amputation. The thought with this being that with a fused shoulder and the strong bicep I would have some shoulder/elbow movement and with a prosthesis I may be able...

Wifeofpain, thanks for your insight. Your husbands experience seems to be inline with what I have read with other BPI amputees. Jeffery, I am in agreement with you. If I had the function of my hand I would likely not consider amputation. With only the bicep though the arm is relatively useless and I...

Hey susie I just realised what you meant by try to send a PM. I sent one to you too and just looked and it doesn't look like it was sent! Anyways below is a copy of what I sent. Hey Susie, Thanks for the reply. I actually live in the UK now since I am studying. I think PMing might be easier than pho...

The files did not attach . If you would like the pdfs let me know your email and I will attach them.

So I went to my GP and I now have an apt with Simon Kay in Leeds for a confirmation that it is a reasonable move to make. I am hoping that he may be able to do it if he agrees that it is the best thing. I know he also does plastics too so maybe he could make it look good (if that is even possible). ...

Thanks for the replys everyone! Dan, the link you provided was particularily useful. I will update you all when and If I get a surgery date . I imagine with it being an elective surgery I will be waiting some months... this will give me plenty of time to think things through.

Cheers,
Andrew