United Brachial Plexus Network

<t>Been off the boards for awhile, but I just had to share with people who would understand what a big deal this is. Can't believe it but my daughter Renee finally learned to ride without the training wheels. She is 8 yrs old and we have tried for the past 2 years but she wasn't ready. This year I t...

<t>We will be there!! We love the aquarium and Dr. Kozin! My daughter is 8yrs old and is really beginning to realize that she is different from other kids and that she has physical limitations. I think she will be more excited about seeing that she is not alone with having this injury. In the past s...

<t>Teresa,<br/> <br/> My daughter puts the glove on her left hand (uninjured side) and catches the ball. Then she tucks the glove with the ball still inside in her right armpit. She pulls the left hand out of the glove, picks the ball out of the glove with her left hand, and then throws the ball bac...

<t>Thank you everyone for your replies. Since I posted the first time, my daughter had baseball practice again and my husband took her. She was playing catch with the two other girls on the team - one being her friend since preschool and the other one being the girl who bullys her in school. My daug...

<t>Rich,<br/> <br/> Thanks for the articles. We were at the UBPN camp in NY and Stephanie was there, but at that time my daughter was only 2 1/2 yrs old! I wish she could meet someone like her now.<br/> <br/> Heddi,<br/> It is just so hard because my daughter can't really express herself and is too ...

<t>Hi! I have a daughter who is 7 now. She suffered a severe ROBPI and has had 4 surgeries to date. She was a trooper dealing with all the surgeries and therapy appts. We settled our lawsuit about a year ago so we thought that we could finally start moving forward with things. Now were are dealing w...

<t>Tanya,<br/> <br/> I posted contact information on your other post about contacting Pia Stampe, but I will post it here too. We have being seeing Dr. Margaret Turk, Physical Medicine & Rehab at University Hospital in Syracuse. Her contact information is (315) 464-5820. When we see her, Lynne L...

Tanya,

We have seen Pia and we have also seen the pediatric Physiatrist in Syracuse for years. Her name is Dr. Margaret Turk and the PT that she works closely with is Lynne Logan. Their contact number is (315) 464-5820. Let me know if you need any more info.

I live just outside of Rochester NY. Let me know if you want to chat. I can email you my email address if you are interested.