Update for the "old timers"

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Joined:Mon Nov 05, 2001 9:34 pm
Injury Description, Date, extent, surgical intervention etc:My oldest daughter suffered a LOBPI. We were sent home form the hospital without being told anything was wrong. She had nerve graft surgery at one year of age, tendon transfer and release at 3 1/2 yrs of age.
Update for the "old timers"

Post by Cara » Tue Aug 09, 2011 12:30 am

For those of you who have been around a while here is a quick update. Rosalynn my daughter with LOBPI is now ten. She did awesome in 4-H this year. She completed 35 projects. She had 3 grand champions, a reseerve grand champ, a div. champ, and 3 div. reserve chanp at county fair. She had six projects go to state fair and recieved a special merit on one. She also did our township dramatic arts. It was her first year and she had the biggest part for a kid her age and even had her own song! she did great with the dancing and all. Sorry I had to brag a little and I know how much seeing post like this lifted my spirits when she was an infant and I was so scared about how she would cope as she got older. My youngest had her heart surgery in March and is doing great. She is off the ventaltor and we are hoping to get the trach out before winter. she will have to have another open heart surgery in the next 1 to 2 years to finish the heart repair, but so far so good. (Actually amazing since two years ago they told use they would never be able to do the heart repair and eventually she would out grow her heart.) Thanks for all the prayers along the way and our adopted grandmas!

Carolyn J
Joined:Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc:LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
Sharing helps to Heal. HUGS do too.
Location:Tacoma WA

Re: Update for the "old timers"

Post by Carolyn J » Tue Aug 09, 2011 7:19 pm

Thank you Cara, for the update on the girls. I am sooo proud of Rosalynn and all she is doing in 4-H. Dagny is such a fighter she is going to surprise everyone. You and Mark have done One fantastic job with all 3 of your girls.

HUGGGZ all around your house,
Gramma Carolyn J

Joined:Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc:I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location:New York

Re: Update for the "old timers"

Post by Kath » Tue Aug 09, 2011 7:57 pm

Please brag... It's so great to see parents posting about all the things their bpi child can accomplish. Rosalyn had really come a long way from those early days.

I am so thrilled for all of you that Dagny is doing so well. I remember all to well when she was born and all the praying. She has done amazing and I will continue to keep praying for her.

Kath robpi/adult

Kathleen Mallozzi

Joined:Mon Nov 05, 2001 5:05 pm
Injury Description, Date, extent, surgical intervention etc:Teen aged home birthed son with OBPI
Location:Fort Pierce, FL

Re: Update for the "old timers"

Post by marymom » Wed Sep 14, 2011 4:32 pm

8-) Hi there, li think i remember you, my Max is 12, and i remember your posts about Dagny i think, way to go!