Off to Philly

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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Tanya in NY
Posts: 935
Joined: Mon May 03, 2004 10:51 am
Injury Description, Date, extent, surgical intervention etc: I am Mom to Amber, injured at birth. I serve on the Board of Directors for UBPN, and am a labor/delivery nurse, too.
Location: NY State
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Off to Philly

Post by Tanya in NY » Tue Dec 21, 2010 9:47 pm

We're off to Philadelphia in the AM for a check-up for Amber and to participate in a research study Dr. Kozin is doing. If anyone is to be at Shriner's tomorrow, feel free to email me (my phone gets my email) and maybe we could coordinate meeting up. My email is nursemidwife86@frontiernet.net.

Tanya in NY
Amber's Mom, ROBPI, 8 years old

gawilliams
Posts: 45
Joined: Sun Oct 31, 2010 12:47 am
Injury Description, Date, extent, surgical intervention etc: Daughter born 8/16/10 has OBPI in the right arm....First surgery(nerve graft) done at 5 months(performed by Dr. Kozin).... four avulsions, one rupture (at the spine)..... As of 4/9/11 still no movement in arm, wrist or hand. As June 2013, bicep, elbow, shoulder function active, flexing with gravity, still no wrist or hand/finger function.

Re: Off to Philly

Post by gawilliams » Wed Dec 22, 2010 3:24 am

Good Luck. My daughter has her first surgery with Dr. Kozin on Jan. 31st. As of right now, she has been diagnosed with Global Brachial Plexus Palsy. Dr Kozin will go in and do an exploratory and from there graft any nerves that he can. If you are allowed to say, what is the study/research for. I would love to know more about Dr. Kozin and his work. Thanks.

Alexis... Mommy to Lauren, 4 months; ROBPI

Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Off to Philly

Post by Carolyn J » Wed Dec 22, 2010 12:50 pm

I am thinking of you ALL.
(((((((HUGS))))) All Around,
Gramma Carolyn J
LOBPI/72


HUGS ARE CHOLESTEROL-FREE,NATURALLY SWEET,100% WHOLESOME AND THEY ARE A COMPLETELY RENEWABLE RESOURCE. ...Jim Yucom RIP+@ age 99!! :)

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