MD wants me to have a shoulder replacement - need help!!

This board is for adults and teens to discuss issues relating to BPI since birth (OBPI).
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dmorgan724
Posts: 9
Joined: Wed Jul 27, 2011 6:51 pm
Injury Description, Date, extent, surgical intervention etc: 39 yr old female that has a ROBPI. Live in Alabama. I have had a total of 3 surgeries (1 muscle, 1 lengthening, 1 ulnar nerve).

MD wants me to have a shoulder replacement - need help!!

Post by dmorgan724 »

I have had a right BPI since birth. I'm 40 years old. To make a loooong story short....I have had a total of 3 surgeries on my arm. The 1st surgery was not until I was in my 30's & it was a muscle transfer (mod quad), 2nd surgery was limb lengthening & rotatio, 3rd was ulnar surgery because the Ilizarov Fixator messed up the ulnar nerve. Well, I was doing GREAT...became an RN, etc. In 3/2011 I was walking in the woods & fell..grabbed a tree & pulled my neck & shoulder....had a CT & showeed a cyst on C6 -7. Got to feeling some better. On 12/2/11 I picked up a 25lb bag of cat liter with my BPI arm only & carried it a good ways in the house. Immediately I felt a pull. By the next day I was having trouble moving it. Since last Thursday I have had MRI's, EMG's, saw 3 dr's, & going for a CT tomorrow. The last dr I saw says the MRI states I have some torn muscles & I have dislocated my shoulder. I have no ROM now..in TERRIBLE pain, shoulder is completely dropped...I'm at the end of my ropes. He is wanting to do (if my deltoid can handle it) a compete shoulder replacement & reversal of the muscle transfer surgery. Any thoughts...suggestions? Anyone know of anyone have this done?? Thank u!!! :)
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: MD wants me to have a shoulder replacement - need help!!

Post by Carolyn J »

Pleasse excuse, but I am not clear on if any of these Doctors especially the 1 that wants this shoulder surgery were/are BPI SPecialists ? If not I recommend a Consult opinion from a boneified,Cerified BPI Specialist.
"bossy" gramma Carolyn J ;)
LOBPI/73+
anotherbpimom...
Posts: 49
Joined: Thu Mar 05, 2009 1:11 am

Re: MD wants me to have a shoulder replacement - need help!!

Post by anotherbpimom... »

Ditto the last response!
carron

Re: MD wants me to have a shoulder replacement - need help!!

Post by carron »

were in alabama do u live. we went to doctors in bham they would not do any thing. but things change in 11 yrs keep looking hope you find some one to help


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