Hi I'm new and I seek for help and information.

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Klioris
Posts: 3
Joined: Thu Feb 10, 2011 6:48 pm
Injury Description, Date, extent, surgical intervention etc: Brachial Plexitis since birth due to doctors pulling on my neck and shoulders because occurance of Shoulder Dystocia, during the pulling my shouldr also have been dislocated from the socket. I was born in Russia in 1991 so there was not even word about any surgery. I also have Scaliosis and Osteochondrosis as side occurances and a very bad immunity. On the begining my arm was fully paralised with the exception of hand and fingers, but on the third month I began to be able to move it, after 19 years I have almost fully recovered due to many years of visiting various rehabs, and I can almost full amplitude movement, tho I still have the famous innability of moving my arm outwards as if swinging tennis racket and I can't put my hand behind my head without help of left arm, and I still can't lift heavy weights and my hand starts trembling even if the thing I'm holding is merely a cup of tea.
I've never had any surgery done.

Hi I'm new and I seek for help and information.

Post by Klioris »

Hello,

I'm nineteen years old and I have BPI since birth. I have almost fully recovered and I have almost full amplitude of movement with the exception of classic outwards position (as if swinging tennis rocket) and I can't put my hand behind my head without help of my left hand. It's also difficult to lift heavy weight higher then elbow level and when I carry something in my hand it start to tremble.
I want to know if it's still possible to have a Nerve Repair surgery at this age or am I considered to old for that? Any kind of information would be of a great help! Thank you!!
User avatar
marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Hi I'm new and I seek for help and information.

Post by marieke »

Unfortunately nerve repair or "primary" surgery is too late (18 yrs too late!). There are "secondary" surgeries, like tendon/muscle transfers possible, but you would need to speak to a specialist and really compare the pros and cons.

Welcome to the message boards!
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
Carolyn J
Posts: 3424
Joined: Tue Apr 06, 2004 1:22 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. I am 77 yrs old and never had a name for my injuries until 2004 when I found UBPN at age 66.

My injuries are: LOBPI on upper body and Cerebrael Palsy on the lower left extremities. The only intervention I've had is a tendon transplant from my left leg to my left foot to enable flexing t age 24 in 1962. Before that, my foot would freeze without notice on the side when wearing heels AND I always did wear them at work "to fit in" I also stuttered until around age 18-19...just outgrew it...no therapy for it. Also suffered from very very low self esteem; severe Depression and Anxiety attacks started at menopause. I stuffed emotions and over-compensated in every thing I did to "fit in" and be "invisible". My injuries were Never addressed or talked about until age 66. I am a late bloomer!!!!!

I welcome any and all questions about "My Journey".
There is NO SUCH THING AS A DUMB QUESTION.
Sharing helps to Heal. HUGS do too.
Location: Tacoma WA
Contact:

Re: Hi I'm new and I seek for help and information.

Post by Carolyn J »

Klioris,
1st, WELCOME to UBPN and the message boards. I advise you to check out the BPI Specialists List on the "Medical Resources " link on the Homepage & try to get a thorough evaluation of your OBPI injuries....everyone's injuries are different.
Feel free to ask questions, there is no such thing as a dumb question on any of the message boards and everyone is welcome to post on any of the message boards. Personally, I have learned alot about Pain Management from the TBPI Boards as well as the General Boards too.
Carolyn J
LOBPI/72 ++ 8-)
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