Search found 672 matches

by ptrefam
Tue Apr 07, 2009 2:20 pm
Forum: Newly Injured TBPI
Topic: Advice
Replies: 3
Views: 1009

Re: Advice

<t>Kevin,<br/> EMG's although good for getting a general reading are not 100% acurate. It seems the accepted time frame for a nerve graph is within 6 mos for best results. It is NEVER too early to consult with a BPI specialist and I recommend doing this ASAP. It is important with this injury to go t...
by ptrefam
Sun Mar 08, 2009 11:47 am
Forum: Parents of OBPI Children
Topic: any advice appreciated
Replies: 9
Views: 1310

Re: any advice appreciated

<t>There are some who do recover without surgery. It depends on the severity of the injury. Dustin's was severe. Complete loss of movement except in his hand. They did tell us that it is rare for a full recovery with this type of injury, either surgical or naturally. However they also told us that i...
by ptrefam
Sun Mar 08, 2009 11:35 am
Forum: Newly Injured TBPI
Topic: Leaning Neck
Replies: 8
Views: 1633

Re: Leaning Neck

<t>Did Rick have a TBI from his accident? Dustin had this and early on always leaned his head away from the side of the brain injury. The drs said that they found this with most patients that had a brain injury, though they don't know why. We were incouraged to try to have him hold it straight becau...
by ptrefam
Fri Mar 06, 2009 1:05 pm
Forum: Parents of OBPI Children
Topic: any advice appreciated
Replies: 9
Views: 1310

Re: any advice appreciated

<t>A second opinion is ALWAYS a good idea. Seeing a BPI specialist is best. Mayo has one of the top teams for this type of injury so I think you are headed in the right direction. You didn't say what limitations or what movements she has so it's hard to tell. But, nerve surgery has a time line. They...
by ptrefam
Thu Mar 05, 2009 1:07 pm
Forum: Parents of OBPI Children
Topic: uk site
Replies: 5
Views: 824

Re: uk site

<t>Are these people who frequent this site? My son is TBPI and I don't agree at all. We have found nothing but support and understanding from everyone on this site. I read the "general" and TBPI sections. Sometimes OBPI but figure that since my son was injured later in life not all of that applies t...
by ptrefam
Sun Feb 22, 2009 12:27 pm
Forum: Parents of OBPI Children
Topic: Any good surgeons in the Midwest?
Replies: 14
Views: 3450

Re: Any good surgeons in the Midwest?

<t>I would recommend seeing the team at Mayo. We are from WI too and that is where Dustin ended up. There is a BP dr at Froedart in Milwaukee. We went there for therapy but did not see the dr so I don't know much about him other than that he is there. <br/> Sue<br/> <br/> Click on the "resources" li...
by ptrefam
Sun Feb 22, 2009 12:24 pm
Forum: Parents of OBPI Children
Topic: Any stories of nerve repair with time and without surgery?
Replies: 6
Views: 1966

Re: Any stories of nerve repair with time and without surgery?

<t>Kathryn,<br/> Recovery with our without surgery would depend on the amount of damage to the nerves. Dustin has a severe stretch. The only surgery he had was to remove scar tissue. He has some limited use of his arm now. Actually with a little manuvering he was able to use his affected arm to get ...
by ptrefam
Wed Jan 28, 2009 10:42 am
Forum: Newly Injured TBPI
Topic: Ideas to help
Replies: 6
Views: 1350

Re: Ideas to help

<t>The degree of disability seems to be determined by each area on different scales. When Dustin went to the DVR he was graded a level 1 right away and moved to the top for aid. This is because he has several other problems in addition to his LTBPI. The DVR helps some with school and will do job tra...
by ptrefam
Wed Jan 28, 2009 10:29 am
Forum: Newly Injured TBPI
Topic: Physiatrist & EMG
Replies: 10
Views: 2722

Re: Physiatrist & EMG

<t>Dustin has been followed by a Physiatrist since his accident. The Physiatrist also did his first EMG. It wasn't too bad. He just said that the couple of pricks done near his neck hurt a bit. Like Mareike says he also has spots that are numb and didn't feel them. He's had 3 or 4 done at the Mayo a...
by ptrefam
Wed Jan 28, 2009 10:21 am
Forum: Newly Injured TBPI
Topic: Recovery at the Mayo
Replies: 6
Views: 1133

Re: Recovery at the Mayo

<t>Dustin was prepped for a nerve graph. When they went in he only needed scar tissue removed. He was released the next day. We are 4 hours away so we were driving. However, they did tell us that in the event it would be a nerve graph he would be in a hot room for several days then moved to a regula...