Search found 8 matches

by finnsgma
Sat Sep 26, 2015 12:35 pm
Forum: Parents of OBPI Children
Topic: Contacting Dr Kozin in Philly
Replies: 3
Views: 4199

Re: Contacting Dr Kozin in Philly

Maybe contact this person, and let them know your troubles and you would like to talk with him. Do the email, then at least you have a "paper trail". Public Relations Stephanie Byrwa 215-430-4178 sbyrwa@shrinenet.org Also, we go to Cincinnati Children's and they are wonderful! The Brachial...
by finnsgma
Sat Sep 26, 2015 12:19 pm
Forum: Adult and Young Adult OBPI
Topic: Iowa Erb's Palsy, Klumpke's Palsy, OBPI connection
Replies: 0
Views: 2661

Iowa Erb's Palsy, Klumpke's Palsy, OBPI connection

If you or your child were born in Iowa with an OBPI we would like to invite you to join our facebook page for support, and the fight to have these injuries required to be reported in Iowa.

Hope to see you soon!
Lisa

https://www.facebook.com/groups/897755066984603/
by finnsgma
Sat Sep 26, 2015 12:19 pm
Forum: Parents of OBPI Children
Topic: Iowa Erb's Palsy, Klumpke's Palsy, OBPI connection
Replies: 0
Views: 2828

Iowa Erb's Palsy, Klumpke's Palsy, OBPI connection

If you or your child were born in Iowa with an OBPI we would like to invite you to join our facebook page for support, and the fight to have these injuries required to be reported in Iowa.

Hope to see you soon!
Lisa

https://www.facebook.com/groups/897755066984603/
by finnsgma
Sat Aug 30, 2014 12:15 am
Forum: Share Your Story: Friends and Family
Topic: Cincinnati 3 months later
Replies: 2
Views: 7171

Cincinnati 3 months later

Finnley has come a long way and is actually crawling despite her LOBPI. However, she is still limited in ROM and holds her elbow bent with her arm in toward her chest alot. Because of this she is still very tight. The doctors did decide to do botox in three muscles and put her in a night cast to str...
by finnsgma
Mon Jun 02, 2014 1:50 pm
Forum: Parents of OBPI Children
Topic: Looking for a Specialist
Replies: 2
Views: 2564

Re: Looking for a Specialist

see my post in the "Share your story, family and friends" forum. Cincinnati update. We were very pleased with our first appointment there. (Cincinnati Children's Hospital)
by finnsgma
Mon Jun 02, 2014 1:47 pm
Forum: Share Your Story: Friends and Family
Topic: Cincinnati Update
Replies: 0
Views: 3398

Cincinnati Update

WOW! That is an amazing place and we are so grateful we went. We met with a team of 5 or 6 people, it was overwhelming but wonderful. The doctor/surgeon, the nurse, the dept. manager, the social worker, and some others. Of course they did a few things baby didn't like, but they were very detailed. T...
by finnsgma
Sun May 25, 2014 11:36 pm
Forum: Share Your Story: Friends and Family
Topic: Headed to Cincinnati
Replies: 0
Views: 3164

Headed to Cincinnati

Finnley is now 3 months old. We have been doing therapy since six weeks. In the last month She has begun having movement in her bpi arm. It is not fluid but she is adapting her working muscles to get it moving. Our local surgeon said the usual, there is progress come back in 3 months. We are so glad...
by finnsgma
Tue Apr 29, 2014 8:38 pm
Forum: New? Start Here!
Topic: Glad to have found UBPN
Replies: 4
Views: 3631

Glad to have found UBPN

I am Lisa, grandmother to Finnley. She was born in February with a broken collar bone, then a week later diagnosed with Erb's Palsy. She is rolling her shoulder and has a great finger grip, but no elbow bending on her own. We have been told by our local pediatric surgeon to "wait and see, most ...