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My child has a brachial plexus injury and is only a few months old. What do I do?
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Brachial plexus injuries have a wide spectrum of nerve impairment. Fortunately most begin anti-gravity recovery of shoulder, elbow, wrist and hand function in the first few months of life. If that is the case with your child (he or she can lift their hand towards their mouth in a sitting position; open his or her fingers wide, lift their arm to the shoulder level), then recovery will probably be full. However, if your child has no or minimal signs of recovery in the first three months of life, you should work with your primary care physician to (1) participate in a therapy program to maintain full range of motion of all joints (2) seek consultation regarding indications for nerve surgery.
(UBPN thanks Dr. Peter Waters for contributing this answer)
How often does this happen?
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Brachial plexus injuries often occur during the birthing process. Availability of brachial plexus statistics vary widely, but where figures are available the general consensus is that brachial plexus injuries occur in 2-5 out of 1000 births.
How do I apply for SSI?
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You can apply for Social Security or SSI benefits at your local Social Security office. You should have your child's SS# and birth certificate available. You will also need to provide records that show your income and assets, as well as those of your child. You may also call this number 1-800-772-1213. You will notice in the list provided by the SSA, that it states "2 limbs amputated", but familes and/or caregivers should not give up if they feel they have a good case. It is also mentioned in this information you may be more successful by having an attorney respresent you. Heed this advice. It is not uncommon to be routinely denied. Please keep this in mind and proceed to the next step. Don't give up.
The following web link may be helpful:
http://www.ssa.gov/pubs/10026.html#applying
How can I get reduced or free airfare to travel to surgery?
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This email address is being protected from spambots. You need JavaScript enabled to view it., who chair's UBPN's Wings Program, can help guide you through this process if you qualify. UBPN does NOT have tickets directly from the airlines. However we can assist you in understanding the process of application with the various airlines who offer tickets to needy families and individuals. If a letter from a non profit organization is required as part of this process, we can also assist with providing that.
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