UBPN

UBPN is a completely volunteer-run organization. As such, we need many volunteers to help us spread the word about brachial plexus injuries. Any and all skills are needed but here is a list of skills that would be of great value to UBPN:

fundraisers

journalists/technical writers

public relations and/or media relations professionals

graphic and/or web designers and Joomla programmers

SEO/Adwords experience

accountants or financial professionals

 

We are forming two new committees!

Graphics and Social Media Committees

Members of the Graphics and Social Media Committee will be responsible for creating graphics for things such as: social media posts and emails, digital publications and website, t-shirts and other swag, as well as creating regular content (written and video) for social media sites like Facebook, Instagram, Twitter, TikTok, and YouTube according the UBPN’s social media guidelines. Members will work together to create a social media/email calendar with scheduled topics and posting days. All content will need to be approved by the committee chair before being posted.

Time commitment will vary throughout the year and according to individual availability. Committee members will help with whatever aspect their skills will allow -- for example: if you aren't a graphic designer, you can still be on the committee and help with content, and vice versa!

Fundraising Committee

Members of the fundraising committee will be responsible for finding, creating, and implementing fundraising opportunities to raise funds to sustain the organization. These could be both virtually and locally throughout our broad community. Committee members can help others set up fundraisers in their own area. Grant researchers and writers are also needed (experience preferred by not required).

Funds raised will go towards current programs such as : Camp UBPN; awareness, outreach, and prevention materials; campaigns, and networking; website and online resource expansion. In the future, we hope to expand additional funds to assist with research and education for professionals, travel or lodging financial assistance, and grant matching.

Time commitment varies each month throughout the year and according to individual availability.

 

 

If you are interested in volunteering or assisting us in any way, Please fill-out the volunteer survey here and please email our volunteer coordinator This email address is being protected from spambots. You need JavaScript enabled to view it.



FREE Virtual Camp UBPN - Register TODAY! 

Sat, July 24, 2021, 10am - 8pm CST

FREE for the family, includes one t-shirt, and then you can purchase additional t-shirts for $10! 

We are going to have a jam-packed day of awesome speakers bringing you lots of great information and roundtables where you can talk to and hear from other parents and those injured!  We will have Tiffany Yu (Diversability advocate), Kiana Clay (Olympic Snowboarder & motocross champ), Paul Fejtek (summited Mt Everest, ironman triathlete), Tom Wheeler (Mt Bike-race champ, NotBroken), Jess Munter (Brazilian Jiu-Jitsu champ), Chris Hacker (NASCAR race-car champ), Dr. Art Armenta, Landus Anderson, Sarah Kelly, Cindy Auerbach Servello OT, Myomo, Dr. Ryan Endress, Morgan Gray, Atty on Social Security Benefits, and several others!!  Plus we will have breakout sessions for Moms, Dads, Siblings, Injured, and Spouses/Significant Others. 

Get registered by JUNE 30th to receive your t-shirt by the event date!!!

After you register, please email me proof of registration and your t-shirt size and the address to send your t-shirt: This email address is being protected from spambots. You need JavaScript enabled to view it.

Click HERE for tickets:

Included t-shirt below!! (t-shirt is a light blue)

 
 
 
UPDATED: 1/25/2022
Information on  UBPN Camp 2022!!!
 
Location: YMCA of the Rockies, Estes Park, Colorado
Dates: June 24 - 27, 2022
Registration starts: June 1, 2020
 

Here are some videos to see the majestic location One and Two and finally here is a picture of the camp from an aerial view

Raising money for Camp UBPN through the Facebook interface is Easy and Facebook takes none of the donations! 

Contact This email address is being protected from spambots. You need JavaScript enabled to view it.or any information about our next camp in 2022 ;)

 

CAMP 2022 FUNDRAISING GOALS

- $40,000 - Injured Registers for Camp PAID FOR

- $85,000 - Each family registered will receive a camp credit

- $130,000 - Everyone registered for camp will be funded!!

 

click below to register

Camp UBPN 2022

REGISTRATION 

  

UPDATED 1/25/2021 : PLEASE READ ALL BEFORE REGISTERING!!!
 
PRICES ON REGISTRATION WEBSITE ARE PER PERSON. *In the shopping cart, update your quantity to reflect how many people you are registering before finalizing!!
 
UBPN CAMP 2022 is a family camp for all of those affected by brachial plexus injuries (adults and children). Speaker sessions include discussions with brachial plexus specialists and therapists, round table discussions for the injured, parents, and siblings, group and individual activities including rock wall climbing, swimming, water activities, archery, and much much more!

EVERYONE UNDER 18 MUST BE ACCOMPANIED BY AN ADULT!!! This is not a camp that you send your child to for the weekend without you!!

Lodging is hotel style. Rooms sleep from 2 to 5 people (we have access to a couple of rooms that can sleep 6).   You will be placed in a room that best fits the size of your family.

THERE ARE NO AC'S IN ANY OF THE ROOMS!!  NO EXCEPTIONS!!!  YMCA of the Rockies is in the mountains and AC's are not needed. MAXIMUM OF 5 PER ROOM BASED ON YMCA GUIDELINES!!!  

THERE WILL BE A $75 NON-REFUNDABLE REGISTRATION FEE APPLIED TO EACH ROOM!!!  If your family size requires more than one room, or if you choose more than one room you will have to pay the non-refundable $75 per room registration fee on each room.
 
PRICES ON REGISTRATION WEBSITE ARE PER PERSON. *In the website shopping cart before finalizing, update your quantity to reflect how many people you are registering. ;)

CANCELLATION POLICY:
If you register, and then cancel before January 1, 2022, you can get what you have paid minus the $75 non-refundable registration fee.

If you cancel after January 1st, 2022, you can get 50% of what you have paid for camp, not including the $75 non-refundable registration fee.

If you cancel after March 31, 2022, you will forfeit all monies paid. You can transfer your spot to another family.

COVID-19: If the State of Colorado was to have large gathering restrictions in place at the time of camp and camp had to be canceled as a whole, you will receive all monies paid minus the $75 NON-REFUNDABLE FEE.  This is used to pay the credit card processing fees, t-shirts, bags, programs, and all the expenses.

Any questions, contact Kimberly at This email address is being protected from spambots. You need JavaScript enabled to view it.

 

 

 
 
 
 
 
 

Awareness Program

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The Awareness Program of UBPN is dedicated to "bringing brachial plexus injuries to light." The main goals of this program are as follows:

  • To increase awareness of brachial plexus injuries among the public at large;
  • To increase the participation and involvement of the Medical Community in the annual Awareness Week event;
  • To increase the participation and involvement of the brachial plexus communities throughout the nation in the annual Awareness Week event, so that more state proclamations are requested and processed.
  • To make a sincere and conscious effort to reach new families, individuals affected by brachial plexus injuries and families with newborns, so that they may become aware of our support and informational network;
  • To enhance our community involvement and sense of belonging.This email address is being protected from spambots. You need JavaScript enabled to view it.

CAMP UBPN

This email address is being protected from spambots. You need JavaScript enabled to view it. - UBPN Camp Coordinator

Camp UBPN 20122 will be held at the YMCA of the Rockies, Estes Park, Colorado in the mountains of Colorado June 24 - 27, 2022. Stay tuned for additional details


Professional Liaison

Chair: This email address is being protected from spambots. You need JavaScript enabled to view it. and This email address is being protected from spambots. You need JavaScript enabled to view it.

The Professional Liaison Program of UBPN strives to establish and maintain open communication between those with a professional interest in brachial plexus injuries and our community. The Professional Liaison Program supports professional endeavors that are of benefit to our community. The four main objectives of this program include:

  • Create and maintain a Professional Online Registry. Registry listings include Medical, Therapy, Legal and Other;
  • Create opportunities for professionals to communicate directly with our community. (Online, in person and in print.);

 


 

Obstetrical Brachial Plexus Injury Support Team

Chair: This email address is being protected from spambots. You need JavaScript enabled to view it. - Adult OBPI

Co-Chair: This email address is being protected from spambots. You need JavaScript enabled to view it. -Adult OBPI, This email address is being protected from spambots. You need JavaScript enabled to view it.-Adult OBPI

The Obstetrical Brachial Plexus Injury Support Team of UBPN welcomes new members to our community who have experienced an Obstetric Brachial Plexus Injury. The Team responds to initial overtures (phone calls, emails, letters, and in person) to UBPN from people seeking information and support. The overall goals of this Program are to direct people to the appropriate resources regarding their concerns and ensure that newcomers feel warmly welcomed and supported in our community. We have online pamphlets that can be printed and used as resources.

 


 

 Medical Alert Contact

Chair: This email address is being protected from spambots. You need JavaScript enabled to view it. - Adult OBPI

UBPN is pleased to announce that through a special grant from The MedicAlert Foundation they are able to provide sponsored (free) memberships to all children under the age of 18. Adults with financial need should send a completed application as well as a letter stating financial need. You may pick only one basic stainless steel emblem.

Please contact This email address is being protected from spambots. You need JavaScript enabled to view it. for and application and a cover letter to be sent with your application to Medic Alert Foundation. 
 
Kindly use the subject Medic Alert in your email requesting application forms and cover letter from UBPN.  Info click here
 

Traumatic Brachial Plexus Injury Support Team

Co-Chairs:

This email address is being protected from spambots. You need JavaScript enabled to view it.Motorcycle accident RTBPI
This email address is being protected from spambots. You need JavaScript enabled to view it. Water Skiing Accident LTBPI
This email address is being protected from spambots. You need JavaScript enabled to view it. Car Accident LTBPI

The Traumatic Brachial Plexus Injury Support Team of UBPN welcomes new members to our community whom have experienced a Traumatic Brachial Plexus Injury. The Team responds to initial overtures (phone calls, emails, letters, and in person) to UBPN from people seeking information and support. The overall goals of this Program are to direct people to the appropriate resources regarding their concerns, and ensure that newcomers feel warmly welcomed and supported in our community. The Open Arms Program works closely with the Within Reach Program and the Outreach Program to maintain a network of caring community members providing accurate and helpful information to those in need.


UBPN Outreach

Outreach Magazine Chair, Editor and Designer: Courtney B. Widzinski, Amy Johnson


The Outreach Program of UBPN is charged with communicating current knowledge of brachial plexus injuries and the ongoing efforts of UBPN to our audiences. These audiences include but are not limited to: the general public, media, and the brachial plexus injury community. Our tools include our publications and informational materials as well as our website and online resources. The over-riding goal of the committee is to provide a reliable source of credible communication for our brachial plexus community as well as the general public.

 


Prevention Program

Chair:
This email address is being protected from spambots. You need JavaScript enabled to view it.

The Brachial Plexus Injury Prevention Program of UBPN advocates for the wellness and safety of all newborns during the delivery process. Through our coordinated efforts to inform, educate, and empower families, medical professionals, educational personnel, insurance providers, politicians, and others, we strive to promote a model of prevention that will reduce the incidence of preventable brachial plexus injuries.

  • The goals of the Prevention Program are to:
  • Create a reference/resource folder & library;
  • Create and solidify a model of bpi prevention;
  • Educate, inform and empower expecting and potential parents regarding birthing positions and their direct impact on the prevention of brachial plexus birth injuries;
  • Educate and inform the medical community so that they become cognizant of the effectiveness of utilizing alternative birthing positions to prevent or relieve shoulder dystocia;
  • Educate and inform medical malpractice insurance companies on how to reduce their liability by preventing brachial plexus injuries;
  • Educate and inform public policymakers/politicians;
  • Petition the CDC to track the occurrence of brachial plexus birth injuries.

 


 Looking to start a support group in your area?

Click here please find a PDF file that may help guide you towards starting a local support group

 

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Contact us

We look forward to your comments and suggestions!

  • Address: 32 William Road Reading, MA 01867
  • Phone: 781-315-6161
  • Website: ubpn.org
  • Email: info@ubpn.org