CONGRATS UBPN 2023 Scholarship Winners!
CONGRATULATIONS!
Nancy Birk Memorial TBPI 1st PLACE Rebecca Jensen
UBPN Academic TBPI 2nd PLACE Grace Fromme
Nancy Birk Memorial BPBI 1st PLACE Sarah Garrett
UBPN Academic BPBI 2nd PLACE Mathom Johnson
New Redbubble store featuring UBPN Logo on items
UBPN is excited to release the link to our Redbubble store that features many items that feature our New UBPN Logo.
If you have a great idea for a T-shirt or design we can add that to our store as long as you own the rights. Want the logo somewhere specific? Let us know
because we can change it, move it and enlarge it if you request the item, just send to This email address is being protected from spambots. You need JavaScript enabled to view it. with your request.
At the website (Click here) you will find shirts, hoodies, cases, bags, just about anything to make spreading awareness easy! Choose which logo you want!
Myomo-Myoelectric Orthotics for BPI
For information on how the Myomo (my own motion) orthotic device could help BPI patients please click here: Myomo-Myoelectric Orthotics for BPI or click here to go to their website
Suffering a brachial plexus injury (BPI) or other upper limb or spinal neurological damage from vehicle, on-the-job or other accident can be devastating: pain, weakened arm, and in some cases a completely “dead arm”. Some patients have even been recommended amputation as the best alternative.
But for many, there is a better answer. Myomo, a medical robotics company based in Cambridge, Massachusetts, has developed the MyoPro. It is currently the only marketed device that, sensing a patient’s own EMG signals through non-invasive sensors on the arm, can restore an individual’s ability to perform activities of daily living, including feeding themselves, carrying objects and doing household tasks. Many are able to return to work, live independently and reduce their cost of care. Myomo is headquartered in Cambridge, Massachusetts, with sales and clinical professionals across the U.S. For more information, please visit www.myomo.com.
Camp UBPN 2024
Who is ready for some Camp UBPN 2024 Information!!!!!
Registration website will go live December 1!!! I wanted to get information to you so you can start planning!!! Also, if you are going to be flying to St. Louis, I suggest not waiting until later to book your flights! Last year going to Denver, the 3 months prior to camp the fares skyrocketed!!! I would book your airfare after you get registered, as soon as you find a good fare!!!!
UBPN Camp 2024!!!
Location: YMCA of the Ozarks, Potosi, Missouri
Dates: July 18 – 22, 2024
UBPN CAMP 2024 is a family camp for all of those affected by brachial plexus injuries (adults and children). Speaker sessions include discussions with brachial plexus specialists and therapists, round table discussions for the injured, parents, and siblings, group and individual activities including rock wall climbing, swimming, water activities, archery, zip lining, and much more!
EVERYONE UNDER 18 MUST BE ACCOMPANIED BY AN ADULT!!! This is not a camp that you send your child to for the weekend without you!
The cost for camp will be $399 per person for ages 5 and up. Ages 4 and under will be $25. UBPN's goal is to have all of those injured attend for free, and our second goal is to have the family members attend for free, also! This will take a lot of fundraising!! The organization is working on some fundraising opportunities, but you can also come up with some of your own in your community. Here in my community, I have started an annual golf tournament. We need to raise at least $40,000 to cover the cost for the injured, and to cover all we need to raise at least $130,000. We can do it if we all work together!!! Everyone pays until goals are reached.
There are a few options for lodging:
GUEST ROOMS: Hotel style rooms that can accommodate up to 4 people. Each room has 2 queen beds. Bathroom with exterior sink and vanity. Table and chairs. Walkout balcony with seating and a lake view.
LOFT ROOMS: AVAILABLE FOR AN UPGRADE CHARGE OF $120 (19 AVAILABLE)
These rooms can accommodate up to 6 people. Upper Level has a couch and 2 roll-a-way beds, sink & vanity, table & chairs, small refrigerator. Lower Level has 2 queen beds, bathroom w/ exterior sink & vanity, balcony with lake view.
LAKE VIEW CABINS:AVAILABLE FOR AN UPGRADE CHARGE OF $600 (10 AVAILABLE)
(SIDE BY SIDE DUPLEX UNITS (ACCOMMODATES UP TO 5 PEOPLE ON EACH SIDE)
Each side has bedroom with full size bed, set of bunk beds and 2 roll-a-way beds, bathroom, living area with couch, table & chairs, stone fireplace, small refrigerator & microwave, screened-in wrap around porch.
FOREST VIEW CABINS: AVAILABLE FOR AN UPGRADE CHARGE OF $600 (9 AVAILABLE)
(SIDE BY SIDE DUPLEX UNITS (ACCOMMODATES UP TO 5 PEOPLE ON EACH SIDE)
Each side has bedroom with full size bed, set of bunk beds and 2 roll-a-way beds, bathroom, living area with couch, table & chairs, stone fireplace, small refrigerator & microwave, screened-in porch with rocking chairs.
THERE WILL BE A $75 NON-REFUNDABLE REGISTRATION FEE APPLIED TO EACH ROOM!!! If your family size requires more than one room, or if you choose more than one room you will have to pay the non-refundable $75 per room registration fee on each room.
CANCELLATION POLICY:
If you register, and then cancel BEFORE December 1, 2023, you can get what you have paid minus the $75 non-refundable registration fee.
If you cancel BEFORE February 1, 2024, you can get 50% of what you have paid for camp, not including the $75 non-refundable registration fee.
If you cancel AFTER February 1, 2024, you will forfeit all monies paid. You can transfer your spot to another family.
Any questions, contact Kimberly at: This email address is being protected from spambots. You need JavaScript enabled to view it.
Information For Parents Of A Newborn With A Weak Or Paralyzed Arm
If your newborn's arm is notably weak or completely paralyzed, your child may have Brachial Plexus Palsy (BPP), also known as Erb's Palsy or Brachial Plexus Injury (BPI). The cause of this injury is usually the stretching of one (or both) sides of the neck during a difficult delivery.
The Brachial Plexus is a network of nerves that go from the spinal column in the neck down to the fingers. The mildest form of this injury is when the nerves have been stretched. When the nerves are torn (ruptured) or pulled out of their spinal "socket" (avulsed), surgical intervention may be the only hope to regain function of the arm.
Read more: Information For Parents Of A Newborn With A Weak Or Paralyzed Arm
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