United Brachial Plexus Network

Thank you all for you help and also the website addresses.
Great help thanks,
Gayle

<t>Hi,<br/> I had nerve grafting surgery in Sept 02. My situation is a bit different but there is still plenty to learn from my results. <br/> I avulsed all 5 nerves on the left arm but because I amputated my right arm and shoulder in the accident, the surgeons had all the nerves on the right side (...

<t>Hi,<br/> I've just been to see my pain specialist and he told me of two new drug options. 1 is Pregabalin or "Lyrica" and the 2nd is Flecainide. Has anyone tried these? <br/> Also I'm wanting to know a good website to go to, to investigate the side effects etc on these drugs.<br/> Thanks<br/> Gay...

I can sympathise with you on this one!! Living in a hot and humid climate it gets bad doesn't it! I sometime gets all red under there. Not a good look!
Gayle

<t>Yeh I do have a great sling my OT designed for me to hold the shoulder in the socket (velcro so it can be tighted up). It's just that the weight of it isn't just a minor problem it's a major problem I can only bear it for maybe 1/2 an hour without resting my elbow on something to take the weight....

<t>Hi, I haven't posted for quite a while as I was off the air for a while.<br/> I am wanting to know if the weight and the drag of the arm is a huge issue for other people?<br/> It's been 3 1/2 years since my accident and my Dr's are only now thinking that I might have done damage to my shoulder (r...

<t>Hi,<br/> Just wondering if you were on an meds with your pregnancies? Do you know what Nurontin might do to an unborn child? I don't know if I could ever go off it. (avulsed all 5 left hand nerves & amputated right arm and shoulder) Just think kids might be an impossibility. I am 30yrs old an...

<t>Hi Amy,<br/> I had a tractor accident in Aug 2002 and my right arm and shoulder were torn off and in my left arm I avulsed c5, c6, c7, c8 & t1. I can tell you that initially phantom pain was bad but now it is nothing compared to the tbpi side. That may be a different story if I was meds free,...

<t>Hi,<br/> I have avulsed C5, 6, 7, 8 & T1. I have Horner's syndrome. I bugs me too, and it also is worse when I am tired.<br/> My neuropathic pain did not kick in till 3 wks after my accident. Absolutely nothing in BPI arm before then. I also amputated my other arm and shoulder in the accident...

<t>Hi,<br/> I have been on Nurontin (Gabapentin) 3200mg per day for over 2 yrs without any major side affects. As it is a drug for Epileptics, I presume many people take it long term.<br/> I am led to believe it is one of the safest out there.<br/> I have had the occational blood test and everything...