United Brachial Plexus Network

Hi -
I check this all the time and still missed this post. Happy New Year to you and Jordan too. Lots of news since we last talked. I tried to send you a PM, but seems it did not work?

So, in short, never lose insurance and never let COBRA lapse if I quit or lose my job. Fair enough. I am one step beyond your scenario. COBRA does not last even if you pay it up. Now, I have been turned down twice for exceeding the guidelines for pre-existing conditions (only one is BPI related- so...

<t>Do you know if anyone else in your family has similar problems with arm or leg weakness? I mentioned above that Neuralgic Amyothrophy can cause arm and hand weakness. It is most common for it to impact the brachial plexus- but it(especially the hereditary type)can also impact other plexus sites- ...

<t>Krista<br/> <br/> I agree that it would have seemed you would have noticed Erbs palsy before now. I woudl also caution that although Physical therapists and Orthopedic therapists know their stuff, they are not the best diagnosticians. It is too bad your regular doctor passed this off to someone e...

I have it set to "yes" to email updates and on threads for which I am the originator, I still get nothing. It has never worked for me since the day I registered.


Message was edited by: rbwalton

<t>Maybe I am missing something simple. What is "Email-updates" in the contro panel for watched forums for? I would think if you have that set, and you have supplied your email address, that you would get an email when the forum topic in question has an addition of some kind. If tat is supposed to h...

<t>Hi-<br/> The way this study came about for me is that a reader of my blog told me about it. I recognized the names of the doctors doing the study from many web-pages I had seen out there on HNA. They have done this before, so I contacted them with my basic history. They had me send in examples of...

<t>Hi Neil-<br/> Yes the pain. . It definately redefined my pain scale since it was at least a 15 on a scale of 1-10. My pain did not last as long as yours- so I guess I am lucky there. But, I am now at nine years since the first attack, and three since the last. I was just getting better in 2006 wh...

<r>Hi- I missed this post entirely. I thought this site sent email on watched subjects, but it never has worked for me. If you tried to email, it must have been with my old email address- I lost yours. New one is <EMAIL email="rbwalton3821@att.net">rbwalton3821@att.net</EMAIL> . <br/> <br/> > Hi! I ...

<t>Parsonage Turner Syndrome would appear to be a more historic term for the disorder also known as Neuralgic Amyotrophy. Use of that older term honors the doctors who first described the disease that seemed to impact the right brachial plexus in most cases. They noted numerous probable causes inclu...