Multiple schwannomas?

Forum for parents of injured who are seeking information from other parents or people living with the injury. All welcome
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mjonis

Multiple schwannomas?

Post by mjonis »

Well, after 2 weeks FInALLY got the MRI results.

They see a possible 2nd schwannoma that's infraclavicular (the one we know of is supraclavicular).

Have the doctor appointment on Monday, to discuss.

I'm really hoping it's not a second one because from my reading, that almost certainly means you have scchwannomatosis, which is NOT good (IMO).

And apparently some degeneration on C5, but I have to inquire about that as well (jeez, only 41 years old in a week)
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