Wisconsin BPI Connection Family Gathering
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Wisconsin BPI Connection Family Gathering
To Register for the Wisconsin BPI Connection Family Gathering just go to the e-mail below.
http://wbpicgathering.eventbrite.com/
We would like to invite you to attend the Wisconsin BPI Connection Family Gathering.
Date: September 13, 2008 From: 10am to 2pm. Where: Neenah Wisconsin.
See Registration page for more information.
This event is to help develop connections between families affected with Brachial Plexus/Erb's Palsy. This is to encourage support, friendships, and encourage an informational sharing experience.
This is an informal event, families, children, and Health Care providers are welcome to attend. Can't wait to see you there.
If you would like more info, please contact me or check out the registration page.
http://wbpicgathering.eventbrite.com/
We would like to invite you to attend the Wisconsin BPI Connection Family Gathering.
Date: September 13, 2008 From: 10am to 2pm. Where: Neenah Wisconsin.
See Registration page for more information.
This event is to help develop connections between families affected with Brachial Plexus/Erb's Palsy. This is to encourage support, friendships, and encourage an informational sharing experience.
This is an informal event, families, children, and Health Care providers are welcome to attend. Can't wait to see you there.
If you would like more info, please contact me or check out the registration page.
Re: Wisconsin BPI Connection Family Gathering
I just found out there will be a special guest here and I am so excited!!! Now I know Dustin will come.
Sue
Sue
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: Wisconsin BPI Connection Family Gathering
We can't wait. There will be about 70 people attending. Whoo Hoo!!
Re: Wisconsin BPI Connection Family Gathering
Woowhoo!! It's this coming weekend. We can bring Dustin's biofeedback if anyone wants to try it. Looking forward to meeting everyone.
Sue
Sue
Re: Wisconsin BPI Connection Family Gathering
Thank you for organizing this, Brenda. (And Michaela!)
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Brenda333
- Posts: 217
- Joined: Mon Nov 18, 2002 6:59 pm
- Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
-- - Location: Wisconsin
- Contact:
Re: Wisconsin BPI Connection Family Gathering
We were so glad you were able to attend. She has me working on our next venture. I'll keep you posted.
