Ideas for Programs for Camp 2009

Discuss Camp UBPN
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richinma2005
Posts: 861
Joined: Thu Sep 29, 2005 12:00 pm
Injury Description, Date, extent, surgical intervention etc: Daughter Kailyn ROBPI, June 14, 1997.
Surgery with Dr Waters (BCH), April 1999 and in February 2012
2 more daughters, Julia (1999), Sarah(2002) born Cesarean.

Ideas for Programs for Camp 2009

Post by richinma2005 »

As a BOD, we are starting to put together ideas of what programming attendees to our next camp would like to have available. The site we are working towards will have alot of fun activities for all ages, and we are confident that it will appeal to everyone. What we want to make sure is that that we offer the educational and supportive seminars that also appeal to all age groups, injury level and individual needs.

We are hoping to get some ideas from the community as to what you might want to get out of this next camp.

What types of programming will appeal to you as attendees? We have several ideas such as bringing in Pain Specialists, vocational councilers, Social Security speakers, Motivational speakers, etc

Let us know what you would like to see. You'll see something in the next Outreach as well asking for input.
bugaloo28
Posts: 4
Joined: Wed Aug 29, 2007 10:39 pm

Re: Ideas for Programs for Camp 2009

Post by bugaloo28 »

I have a 16 yr old who has never been to the camp (do to financial reasons), he has never met another like him. I would love to have counselors there that can help him see it is okay and that there is nothing wrong with him, He seems to be very angry.
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LJSL0330
Posts: 52
Joined: Wed Feb 27, 2008 9:09 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI. Only surgical intervention was muscle lengthening at 2-3 y/o. PT at 35 which increased passive ROM by did not improve active ROM. Also have scoliosis due to left shoulder "hiking."
Location: Evansville, Indiana

Re: Ideas for Programs for Camp 2009

Post by LJSL0330 »

It seems like a small thing - but a typing clinic. Might be good for teens and adults to learn ways to compensate for BPI while keyboarding. For teens planning to go to college I think it would it would be especially helpful but helpful for anyone who uses the internet to post on message boards!

I basically taught myself to type one handed after a teacher in high school said she had "no way to teach typing to someone with just one arm." I have TWO! One just doesn't work as well! (BTW - I found books on one handed typing years later. Yes, there are ways to teach people who have limited use of one hand how to type!)
sydsmom
Posts: 22
Joined: Thu May 19, 2005 7:14 pm

Re: Ideas for Programs for Camp 2009

Post by sydsmom »

At the last camp there was someone to help the girls. It wasn't very helpful at the time for us because Sydney was too young, but now that she's older we could use that help. Things such as putting hair in a ponytail, using a curling iron, etc...Thanks.
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Ideas for Programs for Camp 2009

Post by Kath »

That was a great meeting even for adult/obpi attending.
I learned a lot about my mother from the mother's.

It should be held again and I'm sure we could get adult/obpi to attend.

Kath robpi/adult
Kath robpi/adult

Kathleen Mallozzi
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Ideas for Programs for Camp 2009

Post by marieke »

I was one of the "girls" who helped with how to do a ponytail, And Amy gave her way too. I know one of the girls, Julianna has similar amount of use with her BPI arm and her mom told me that it helped her figure it out seeing how I did it.

Us older BPIs can definitely help the younger ones with various things. It would be great to put together a list of some things and be able to sort of prepare before hand for some of it.

Marieke 34 LOBPI


Message was edited by: marieke
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
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marieke
Posts: 1627
Joined: Fri Apr 01, 2005 6:00 pm
Injury Description, Date, extent, surgical intervention etc: LOBPI
no external rotation against gravity, can only go to 90 degree fwd flexion, no hand-to-mouth
1 surgery at age 14 (latissimus dorsi transfer). In 2004, at age 28 I was struck with Transverse Myelitis which paralyzed me from the chest down. I recovered movement to my right leg, but need a KAFO to walk on my left leg. I became an RN in 2008.
Location: Montreal, Qc, Canada
Contact:

Re: Ideas for Programs for Camp 2009

Post by marieke »

re: vocational counselors

We could also have some of us tell the teen and kids what we do for a job now/or have done.

We have OT's, RN... I think it might be good for them to be able to ask us how we did it/what we had to overcome. And just be able to show them what THEY could do too!

Marieke 34, lobpi
Marieke Dufresne RN
34, LOBPI
http://nurse-to-be08.blogspot.com
Kath
Posts: 3242
Joined: Mon Nov 18, 2002 4:11 pm
Injury Description, Date, extent, surgical intervention etc: I am ROBPI, global injury, Horner's Syndrome. No surgery but PT started at 2 weeks old under the direction of New York Hospital. I wore a brace 24/7 for the first 11 months of my life. I've never let my injury be used as an excuse not to do something. I've approach all things, in life, as a challenge. I approach anything new wondering if I can do it. I tried so many things I might never have tried, if I were not obpi. Being OBPI has made me strong, creative, more determined and persistent. I believe that being obpi has given me a very strong sense of humor and compassion for others.
Location: New York

Re: Ideas for Programs for Camp 2009

Post by Kath »

This meeting with Mother's & daughters really helped to comfort many of the mothers. They worry about the future of the daughters regarding motherhood, dating, managing daily tasks along with their choices of professions.

It was Amy who demonstrated her ponytail. The parents had so many question during this private session. It was just for females.

Kath robpi
Kath robpi/adult

Kathleen Mallozzi
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hope16_05
Posts: 1670
Joined: Tue Jul 01, 2003 11:33 am
Injury Description, Date, extent, surgical intervention etc: 28 years old with a right obstetrical brachial plexus injury. 5 surgeries to date with pretty decent results. Last surgery resolved years of pain in my right arm however, I am beginning my journey with overuse in my left arm
Location: Minnesota
Contact:

Re: Ideas for Programs for Camp 2009

Post by hope16_05 »

That was a really awesome session! I have an even better way to do my pony tail now! What I have accomplished since 2005, its amazing.
Hugs,
Amy
Amy 28 years old ROBPI from MN
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