no bpn infprmation in ireland

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joy donohoe
Posts: 76
Joined: Thu May 15, 2008 6:26 pm

no bpn infprmation in ireland

Post by joy donohoe »

hi all i live in ireland and have a son with bpn
he has recieved no help at all, i have tried to get information or get it touch with an organisation but there does not seem to be any thing any one living in ireland with info on this please write back

joy
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Brenda333
Posts: 217
Joined: Mon Nov 18, 2002 6:59 pm
Injury Description, Date, extent, surgical intervention etc: Daughter has global palsy (c5-T1 injury) 5 surgeries at Texas Children's by Dr
Laurent, Shenaq, and Nath. 1st Surel graft 2nd Intercostal transfer 3rd Latisimus Dorsi transfer with subscapular release 4th Pec release 5th Bicep lenghtening, (which weakened her bicep, and contracture returned.) Has went through serial casting with fair results. Her arm is about a hand shorter then the other. She has limited hand function. (able to grasp) Arm stays pronated. Unable to get to neutral. Now dealing with sternoclavicular subluxation. All that being said....She is very functional. She is a very determined, strong, tenacious young woman. Now 15. She plays the trumpet, french horn, drums, guitar, and now learning piano. Has always played on a softball, and basketball team. Until recently, for fear of further injury due to the sternoclavicular subluxation. (separation of colarbone from sternum) Not sure if all this is spelled right.
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Location: Wisconsin
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Re: no bpn infprmation in ireland

Post by Brenda333 »

Erbs Palsy Association of Ireland Website
http://www.erbspalsy.ie/
Brenda
BPI Connection
http://www.freewebs.com/wbpic
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